Things are looking up: update on life with Hypermobile EDS

Mold illness sucks

Symptom and doctor appointments update. EDS sucks.

Generic MS injectable medication was not good for my hypermobile EDS body

Updates and test results

Content warning: short talk of assisted death because I am triggered by something I just read.

48 hour flat test progress

Halfway through at home 48 hour flat test for suspected spinal CSF leak

An experience reporting seroqueal side effects. More thoughts on pharmaceuticals

OHIP funded telemedicine franchise experience

How I need to spend most of my time reclined, and do I really have MS?

Short distance walking is better today. Coming out of a month long positional migraine.

Current symptoms and navigating and impossible medical system with hEDS, POTs, CM1 and MS

Why I’m wondering if I have a CSF leak

Symptoms this morning and rambling about why I choose not to have many friends

My resting heart rate is slowly going down every day since stopping seroqueal

You can’t cure EDS with celery juice ~ rambling about detox related myths, and documenting symptoms

Feeling a little better despite terrible head pain

I called my ENT’s office even though he’s now a plastic surgeon

Symptom update (off seroqueal)

I don’t like seroqueal

Brain fog

Craniosacral therapy is great

Involuntary movement update

Keeping a record of walking difficulty

Desperately seeking a doctor with knowledge of neurological complications of hEDS

Discussing new symptoms with my doctor

Orthostatic intolerance and isolation

I woke up thinking it was going to be a better day, then I stood up

Confusing current symptoms and wanting to be vertical