Three families tell their story of what it is like to have a child with Edwards' syndrome.

Edwards' syndrome, also known as trisomy 18, is a rare but serious condition.

A baby with Edwards' syndrome has 3 copies of chromosome number 18 instead of 2. This affects the way the baby grows and develops.

This video contains sensitive content that some may find upsetting.

00:00 - Diagnosis
02:09 - Memory box
03:10 - Mosaicism
05:13 - Processing results
06:50 - Life now
08:08 - Planning for end of life
09:22 - Telling a sibling
10:28 - Building further memories
11:12 - Being prepared for the future
12:32 - Grief
15:42 - Family
16:07 - Support

You can find out more about Edwards' syndrome at https://www.nhs.uk/conditions/edwards...

You can get support and advice from charities such as Soft UK
https://www.soft.org.uk