Advances in Measurement and Valuation of Paediatric Health-Related Quality of Life (HRQoL): Key results from the Australian QUOKKA Research Program

Featured speaker: QUOKKA Research Team, Australia

Abstract: The webinar will be organised across three areas of work to advance methods for generating and valuing health-related quality of life (HRQoL) for children with a focus on strengthening decision-making.

New evidence on measurement of paediatric HRQoL featuring results from the Paediatric Multi-Instrument Comparison (P-MIC) study, which generated a comprehensive database of over 6,800 children to understand the performance of alternative paediatric HRQoL measures and new research to understand and strengthen self-report versus proxy-report.
Research findings on valuation for paediatric HRQoL including how the general population make choices when valuing paediatric HRQoL and methods for improving stated preference elicitation.
New evidence on the societal views about whether child quality-adjusted life year (QALY) gains should be given different weights than adult QALY gains, and how those views differ by child age and type of QALY improvement.
The provisional plan is a one and a quarter hour time slot composed of 5 minutes of initial housekeeping, an approximate 55 minute presentation and 15 minutes for discussion.